All posts by JamieJordan

I know I’m a rockstar you don’t have to treat me like one

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People watch me everywhere I go. I don’t know if they are curious about the chair, or if I am just so good-looking that they can’t help but stare.   I started to notice it in grade school. Nobody said anything really, there was just always someone watching me. As I got older, that changed. I started to notice people whispering and some would even point. Girls talked to me differently than they did the other guys.  Adults while being unsure about me, even scared of me, generally treated me better than they did other kids. At some point I decided if people we’re going to watch me, I would give them something to watch. I learned to become outgoing, and enjoy being the center of attention wherever I am. I’ll never understand why  people don’t just ask what’s on their mind. If you ever see me on the street and have a question please ask it, no matter how stupid you may think it is. I would rather you ask then not. Anyone who knows me, knows I will answer pretty much anything. Nothing is really off-limits

When I was in college, I had a three hour advertising class that I did not enjoy. There was nothing wrong with the class, I just didn’t want to be there most days. The class started at 1 PM just after lunch. One day, I decided to test a theory .

My theory was that I could roll into the class however late I wanted, and no one would say a word, including the professor who was in her first year. For six weeks I took a long lunch and got to class at least a half hour late every time the class met. I didn’t say anything, I didn’t draw attention to myself, I just rolled in, with my drink in hand, and took my seat. The professor never said a single word, never gave me a look, and I got an A for the class. Granted, I did all my work and studied for the tests, but I’m pretty sure anybody else would have been dropped at least a letter grade. I couldn’t have done that with Dr. Leigh she would have thrown me out of the class and told me not to come back.

People like her are people that I respect and don’t want to disappoint, ever. She never saw the chair or saw me as disabled. If she wanted to talk about something, we talked, just like regular people. I very rarely feel like a regular person. Most days I don’t mind it. If I ever get famous I will already be used to the attention. I had a very close friend  I only met once in person.. She was extraordinarily beautiful and she felt like men and other women were constantly judging her for her beauty. We spent two days together. Afterwords she told me on the phone that those two days were extraordinary because for that time, in a long Time She felt invisible. She felt for the first time in a long time that no one was watching her, because every eye was on me. She said in those two days she was more comfortable then she could ever remember being, because she was invisible. Her name was Patricia and you can read about her here

So what’s the moral of the story? Well, people are just people. Disabled, tall short, fat, thin, it doesn’t matter. Be bold and talk to them. you never know what you might find that out. It’s cool being a rock star most days, but just having a conversation with someone is a lot more fun.

A round of applause for another fabulous comic please. Thanks Evie

 

My friends never ask me to help them move

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People never ask a guy that can’t lift anything, and doesn’t drive to help them move. Some point I will have to move and I will probably feel guilty because I have to ask for help. Maybe I can just attach a wagon or a trailer to my chair and do it that way. The chair only does 4 and a half miles an hour. I hope I’m not moving very far, or that would take forever. Can you imagine a caravan of people in wheelchairs with wagons or trailers attached to them helping someone move? That would bring out the whole neighborhood to watch. It would be the slowest move-in history, but it would be entertaining.

Happy Friday everybody.

I wonder if Evie would help me move?

I love it when a plan comes together

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It may seem a little ridiculous in 2016 but there are only a few tables at most restaurants where someone in a wheelchair can sit comfortably. I’m not complaining, I’m just stating a fact. High tables don’t affect you at all if you’re not in a wheelchair. Most people who eat out are totally able to use them. I was out with my family this weekend for lunch and the table we were seated at didn’t work because it blocked the aisle so that other customers and the waitstaff couldn’t get by my chair.

The waitress did not understand why this was a problem until I demonstrated it to her. The comic today is funny but I’ve actually been in that exact situation many times.

I’m may be in the minority here, but I don’t actually believe that it is a restaurant’s responsibility to plan for every different type of disability. I actually think it’s my job to plan smartly and be able to adapt to any situation. I actually had a woman tell me that she didn’t want to go out with me, because it would take too much planning. It hurt me at the time, but it’s actually true. I very rarely leave my house without a plan. I know what I want to do, and have some idea of the path I need to get there.

It’s very rare that I go into a restaurant with no accessible seating, but it does happen. It’s even rarer still, in that situation that the staff isn’t willing to do the extra work for me to have a comfortable experience. Whether that means moving a table, or actually moving a party that is already seated, I’ve had both happen.

Thing is if I happen to go into a restaurant with no available seating that suits me, finding another restaurant with similar food that I want usually isn’t hard. I usually don’t find it useful to complain at all. When I roll into a room, people already have some idea of what they think of me before I even speak. I don’t think it helps their perception of me if I am rude, or if I let them know that I feel I’ve been discriminated against. In my mind that puts a bigger barrier between them and me then the one that’s already there from the start.

I know that’s probably not a popular position in today’s world. Everyone feels as if they have the right to speak up and be wherever they want to be. That maybe true, but I believe I have to pick my battles every day. If I can’t get into a certain restaurant that’s not really the end of my world. In my experience when you look at life that way, it becomes much less complicated.

Evie would you pass me some pancakes please? Thank you for another fabulous comic.

I can do anything with a little help

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This post is a day late. I knew I had a great motivational comic in the works and I wanted to wait to post it. When you’re in a wheelchair almost every part of life is different than for a normal person. That’s not a bad thing it just is. I’ve been in this situation as pictured in the comic many times. 9 out of 10 times I’ve gotten to go down that slide with some amazing help from someone else. it is very strange to be independent minded like I am and yet require so much help for things that most people take for granted. The thing about overcoming a challenge is that you can have all the help in the world, but before any of it is useful, you have to be willing to work and do your part. Every challenge I have ever faced I needed someone’s help to overcome it.

I have had people literally carrying me up the ladder of a slide like you see here. This blog is another great example. The writing comes from me but I cannot express to you how much work Evie does on a weekly basis to give me the ability to talk to you. Besides this project she is involved in everything else that I do. Having her with me has changed my life(and I’m not just saying that because I know her mother reads this.) At this point, I don’t start a new project without her, she means that much. If I wasn’t willing to do the work. she wouldn’t want to help nearly as much.

I do get frustrated because I need so much help, I think anyone would, but as a friend of my dad says “Do the best you can with what you got”  I am less afraid now than at any other point in my life to ask for help, but I know I have to be willing to do my part. What challenges do you need to overcome and who can you ask for help? (if you’re a really nice to me I’ll let you borrow Evie but I’ll need her back).

For more on this topic check out The support system

I didn’t need a go cart as a kid I had a wheelchair.

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It doesn’t matter whether you are in a manual wheelchair or a power chair, to everybody who was walking, it looks like a go cart. I have adults, meaning people over 30, constantly asking if I would like to race,. I think a lot of them were being serious. Then there are the guys who ask if I have ever seriously considered souping up my chair with nitro or something. That probably needs to be a new reality show on cable. Rocket Chairs (working title ).

I’ve had plenty of fun in every chair I have ever owned. I went to summer camp every year when I was a kid. I remember one year in particular, that one of the guys I went to camp with, pushed me to the top of the hill,(it took a lot of work) then at the top, got momentum going and stood on the back of my chair and rode all the way down. We were probably doing 25 miles per hour by the time we hit the bottom. Looking back I could have been seriously hurt, but it was a blast.

I have people in public routinely ask me if I have a license to operate my chair, I have to bite my tongue every time, because it is usually the guy who almost hits three cars on his way into a parking lot that asks me the question. It’s a wheelchair that does 4 miles an hour, not a UPS delivery truck.

I’ve often thought that wheelchair racing should be a sport. You could have each chair sponsored just like NASCAR. A bunch of spastic disabled people racing around a track in supercharged power chairs. I would watch that.

 

A big round of applause for today’s comic please. Thanks Evie. I do have one question though, where is the cat? She couldn’t ride on the back?

 

Anybody need a ride?

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Kids love rides they always have. When I was younger, neighborhood kids would hold onto the back of my electric chair on skateboards or roller blades, and I would take them around the neighborhood. Of course when I was younger I never thought about charging a fee, but some of them probably would have paid it. My nieces love to ride. I usually have one standing on the back and another in my lap. If there are other kids around they get them involved as well. Most of the time it’s something that I really enjoy but I do wish that I could charge the occasional kid a fee, I mean after four trips it’s like come on kid aren’t you bored yet?

Adults don’t usually like to ride unless they are in the bar and stupid drunk. Then they ask to ride. It is always kind of sad to me to be the sober guy in the bar, and to know that the woman in my lap who requested a ride around the bar won’t remember anything in the morning, and if the same woman saw me on the street the next day, I’m not someone that she would speak to. I have had sober women take rides before, but it is much more rare. Most sober people believe that I will break or the chair will. Neither has ever happened. Sober people don’t always like my driving however. When you have someone in your lap a straight line is hard to do just saying.

 

A round of applause for Evie please, and the fabulous comic.

 

Speed dating on aisle 5

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I don’t think I need to say a lot here. I will say that none of those conversations have ever turned into a date. I think most women want a guy who can reach stuff for them not the other way around. Anybody got any good grocery store pick up lines?

As always thanks to Evie for making us all smile.

Happy Friday everybody

It may be a wheelchair but at least it’s comfortable

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I have lived with cerebral palsy for almost 37 years now and as I get older it gets harder. One thing that always stays the same is the fact that my seat is always comfortable.

I could tell you what I struggle with every day,( and sometimes I do) but most of the time I think we should always look for the upside in every situation, I don’t really think about my Seat until I’m sitting at a sporting event, or in church,(Church it Is interesting because not only do most people have to sit in uncomfortable seats but they have to get up and down a lot too) I think the church leaders do that to keep most people awake.(Holy aerobics, up down, up down, up down) It’s extremely comical to be sitting in a church service, while  every other person in the building is standing.

I often joke that if I could add a couple cup holders, and a massager attachment I’d have a La-Z-Boy on wheels.

 

If you are having a tough day, tough week or tough month, I promise there is an upside.  You may not like your job but the fact that you have the ability to go to a job is a blessing. I’m certain your paycheck is better than mine.

No matter where you are or what you’re doing there is an upside, you just have to be willing to look for it. No you can have my seat.

 

Are you jealous Evie? Give her a round of applause folks for another fabulous cartoon.

 

Do you know where your remote is?

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I spoke to a school recently and I had a sophomore in high school ask me if I had ever been bullied. My answer was no. That seemed to surprise everybody in the auditorium. What might be more surprising to you is that it’s true.

Everyone was always nice to me. I don’t know if this is because they genuinely liked me or if they were afraid. I’ve learned as I’ve gotten older that there is a lot of fear out there towards me and the other people with handicaps. Fear of the unknown I guess.

I think one of the main reasons I was never bullied was because I was vocal. If someone had wanted to push me somewhere I didn’t want to go, there wasn’t much I could physically do to stop them. No one ever really tried. I think this is mostly because everywhere I went the authority figures, teachers or older people were always my friends.

If someone had ever tried I would have been very loud and vocal about the fact that I was not a fan of being moved without my permission, and someone around  would have come to my aid. Evie has told me that I am the loudest, most opinionated man she has ever met, bar none. I think most of the people that know me would say the same thing.

I think it comes from the fact that someone in my position has to be able to communicate well because if we are in public there’s a pretty good chance that we will require assistance of some type from others around us. I don’t like it, but that’s just a fact of my life. Because of this, if I don’t like something or don’t want to do something, I’m pretty loud and obvious about it.

I think that’s the key to bullies. You have to make your desires known, and make them known loudly. Preferably to somebody in authority.

I know lots of people, especially young people want to handle their own business, and don’t want to be seen as unable to take care of themselves. If you are one of those young people reading this. Take it from a guy who can’t take care of himself. Like it or not, at some point you are going to have to ask for help from others to be successful.

I truly believe that human beings are not designed to work alone. Maybe that’s just because my circumstances don’t really give me an option to try to work alone. There are many times in my day, whether it’s getting dressed, or going to the restroom, or showering that I wish I didn’t have to ask for help. In each of those situations however, I don’t really have a choice. If you are being bullied, say something. In many cases I promise there is no better choice. You are important, and your opinions and desires matter.

You can take control of every situation that involves you. Sometimes taking control means asking for help. Sometimes you may have to ask more than once. If that’s what it takes then do it. You are in control of what happens to you. If it has already happened, be loud and let anyone who will listen know, so that it doesn’t happen again. You are too important to be bullied, abused or neglected. You are special, and worth it. Take control and let everyone else know it.

I am insanely protective of those who are important to me. You are important to someone, never doubt that. We’ve all been given free will and the ability to take control of our lives however we choose. Don’t lose the remote.

Thank you to Evie for being my partner in crime and helping me to illustrate my stories far better than I could on my own.

True stories of being special

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I have been “special” for my entire life. Rode a special bus. Went to special class. Have a special chair, and “special needs.” I love to speak, I’ve been doing it in front of crowds since I was 14 years old, I have bombed once. It was a large group of old men. I was about 17 and it was a lunch program. Their faces never changed, and they never moved. Looking back on it, I’m pretty sure they couldn’t I understand a word I said. The rest of my experience has proven that if the group I am speaking to has a pulse, I will be well-received and I will probably get a standing ovation at some point.

This is not because I’m the greatest speaker to ever live, or because I have some special talent. It happens because I speak my mind, in words than normal people can understand and relate to, and because I’m special. I can get  on on to a stage and say “my dog is brown” and a third of the audience for find it inspirational. Why? Because of where I sit. Because they can’t imagine having my circumstances, and how tough it must be. Truth is I’m just a guy. I go through life like everyone else. I have ups and downs just like you. The only difference is, my chair is comfortable

If I’m ever sitting outside of someplace like a restaurant or a movie theater, one person will stop every 15 minutes and ask if I need help or need to call for a ride. I have had 90-year-old grandmothers using walkers offer to help me. I’ve had moms with a mini van full of kids ask if I need help. Every so often one of these people will literally pat me on the head and say it was nice to meet me. I don’t mind this most of the time. I’ve learned that it comes with the gig. The only downside to this is that no woman will ever take you seriously if she has seen another person pat you on the head in public.

Worse than being patted on the head, is when someone talks to you like you’re two. This happens to me a lot in restaurants. I’ve been out on dates and had the waitress ask my date what I would like to drink. They look at them and say” and for him?” This is when I speak up and let them know that I do in fact possess the power of speech. You would think that this would give them a clue that they can treat me like an adult. Some do, and some try to give me a juice box.

What’s my point with these stories you ask? It’s simple, never make  a snap judgment about anybody. Always assume that you are talking with someone who is at least as smart as you, probably smarter. If you don’t know what to say, just say something, because acting like that special person in front of you just won the special olympics, or is invisible, is worse  than saying something stupid. If you pat them on the head at least you’re doing something and I guess. Just don’t be  real obvious about it.

Thanks again to Evie for the comic. She is on roll. Happy Friday everybody.