Life is hardcore but you are the Terminator

Let’s get right to the truth. There are aspects of your life that are going to suck. You wake up, and your teeth are all grungy and your breath stinks. Everybody’s breath stinks when they get up. Everybody has to brush their stinky teeth. It sucks. Nobody likes to spend time doing this little task, but we all have to. And this is just one of the 15 million little things about your life that is going to suck.

Personally, the suckiest thing in my life is that I have to brush my teeth. Just kidding. My sucky thing is the obvious one.

Yeah.... all this...
Yeah…. all this…

 

Image curtsy of https://ldnk.wordpress.com/2013/11/19/wc-part-management/

But really, we all have bad days but you can’t allow it to take over and own you. Life also has really awesome things too. Like when your teeth are freshly brushed and you can sweep your tongue along them and not taste grimy-ness. Many people look to their children as the most joyful part of their life. (Maybe your kids can also bring you stress, but see how you can use the love of your kids to uplift your spirit?) Maybe you have a good job that provides for you and despite the stress that it brings you can be happy about the security of employment.

Bills: Another Sucky Part of Life

Everybody has bills. I have bills and I don’t even have a job! Well, not a conventional one where I know when I’ll be paid and how much. Is it stressful? Not really.

I feel like people get too wrapped up in stress about money. We want to live beyond our means. We want the newest technology with the white ear buds. We want the phone with the bazillion available apps. We want the designer clothes and the nice shoes and the nice handbags and the cool cars with the GPS built in and the electric everything, but we can’t always afford it. I’m not an accountant or a specialist about finance, and I’m not going to lecture you about getting your finances in order, but if I can say one thing about responsible spending I would say live below your means.

When the new iPad tablet came out, I really really wanted one. I couldn’t afford one with my income, so I didn’t get one. I waited. A couple of years passed, and I was telling a friend of mine about how I still wanted this gadget. He happened to have a Samsung Galaxy Tablet that he wasn’t using, and sold it to me for $150, a price within my means. I had to settle for something that was different than what I had in mind, and I had to wait for 2 years to get it, but I’m happy that I didn’t use a credit card or some other type of loan to put myself in debt and amount more stress.

Maybe you’re already in debt, as many people are, and it’s wreaking havoc in your life already. I read a report from 2012 that stated that 70% of married people have money problems. Money is also cited as one of the top problems that couples argue about. There’s no doubt that money can bring on a great deal of stress.

 

Can I get an Amen?
Can I get an Amen?

Image Curtsy of http://www.slideshare.net/

 

If you’re swimming in debt, it’s a problem that you can’t ignore. If you are stressed because you’re not pretty enough, smart enough, or tall enough, you should ignore that, and focus on your positive traits. But if you are stressing about bills, you have to address the problem. Begin fixing the problem areas where you can, but remember that you can’t change what’s been done in the past. This may help you to release some of the guilt and stress so that you can enjoy your life.

 

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I have two Little minions that love to ride on my chair

I recently took my two nieces to see the minions movie. I love the movies in the despicable me franchise, I’m not ashamed to admit it. If you really want to enjoy them you have to take kids. I’m so thankful for my two nieces every day. They have changed every aspect of my life. They even changed what I consider a dirty word.

I Love having my own minions. That said, it’s nice to send them home to their parents after I’ve had a little fun with them.

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I’m smart most of the time

Confession time

I play  the lottery. Most of you are like yeah what’s the big deal?”

I consider myself to be really smart with my money.  I have to be since I’ve  never had a 9-to-5 job. I talked about that in a previous post Here I have been reading a book the deals a lot with positive energy and managing your moods  on a daily basis. When I’m holding that ticket in my hand, it truly affects my moods until the drawing. I daydream more and think, what if. We must all do that or the lottery would make any money.

 

Yeah....I know better
Yeah….I know better

The truth is it’s one of the worst things you can do with your money. The odds of winning are astronomical. Every time I Play I tell myself “someone has to win, it might as well be me.” I suppose people do win. Thing is I’ve never met anyone that has. That what if feeling is very powerful. Now that I’ve become an adult, I don’t have that feeling as often as I did as a kid. That’s very sad to me. I honestly believe the most people have stopped dreaming and it takes every ounce of energy they have just to get through the day. That’s an awful way to live your life I’m pretty sure it’s not what God intended. If you have something that allows you to dream, I Say keep doing it, as long as it’s not a harmful to you or those around you. I’ll probably never win. I have Dave Ramsey yelling in my head as I type this, and I submit that he’s right. It’s a waste of money. I say if spending a couple bucks every so often helps improve your positive thinking it’s worth wasting the money. Just don’t tell Dave.

 

Thanks to http://giphy.com/search/finger-wag for the use of their graphic

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Not quitting is hard stand up and fight for yourself

Dear Diary: January 3, 2013

Like millions of Americans out there who are struggling to better themselves because of the New Year’s Resolutions that they vowed to follow for this year, I too am starting my own strict physical training. By this time next year, I will be known as Super Wheelchair Man.

What would YOUR Super Hero name be?
What would YOUR Super Hero name be?

Seriously though, I bought myself a standing frame. Actually, my insurance bought it, or Santa Claus for all you believers out there. He was a few days late, but I won’t hold it against him. I think I referred to this as a “standing box” in previous chapters. This one is much more sophisticated and modern. Here’s a picture of the box:

Yes i'm standing and yes it hurts
Yes i’m standing and yes it hurts

        Makes you stronger! Tougher! More Amazing! More Inspiring! Funnier! You may even learn to walk! Comes with Best Friend! Comes with table to put all your crap on while you stand! Apple Flavored *Not Approved by the FDA)

This is me, opening my EZ Stand box:

My ghost writer, who is not a ghost and barely qualifies as a writer, asked me why I would want to torture myself in this way. She even asked me if I was hoping to learn how to walk with this device. I’m guessing she will be the one on the sidelines screaming, “Run, Forrest! Run!”

Most people’s Resolutions:

1. Lose Weight

2. Get Rich

My Resolutions:

1. Learn how to walk. (Not really, just standing would be fine)

All joking aside, I bought the standing frame so that I could improve my overall body strength. This should allow me to be more helpful when I am being lifted into my chair and with the daily tasks of moving my body around. Wow, I sure sound helpless when I say it like that. Thank goodness the EZ Stand comes with a best friend. It doesn’t really. I was kidding.

So I started my writing session today feeling really sore from using the EZ Stand. It is far from easy. Whoever named this chair was obviously someone that can already stand, because if standing isn’t a problem for you then yes, it’s super easy. This device is also entirely unnecessary for you if you can stand, unless you just need an excuse to feel successful and good about yourself by showing how well you can do this piece of exercise equipment. If you are struggling with all of the exercise equipment in your local gym, this might be just the thing for you! EZ Stand!

(I’m really sore today from exercising.) What kind of exercises? (Standing.)

Like I mentioned before, some people find me inspiring. I guess I can add this to my “list of reasons why Jamie is inspiring”.

INSPIRING!

  • Has a chair with WHEELS!
  • Sometimes says funny things
  • Can almost stand with assistance!

Are you inspired yet?

 

Update

I wrote most of this  almost 2 years ago  as part of a book  that has now been moved to this blog. I’m still standing three days a week. Most of those days I would rather not do it. I think with most exercising it gets easier the longer you do it. This has not been my experience.  I’ve made progress, I now stand fully upright more often than not. The pain has not gotten better, in fact I take a physical beating every time I get in the frame. Now it’s more of a mental test. I know it’s going to be awful every time I do it, and I have to find ways just to get it done.

I’m still doing it because I refuse to let the pain beat me and have control over me. Sometimes there’s no easy way to do something, and you just have to have the will not to quit no matter how hard something may be it’s that simple.

 

 

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Will Jamie Jordan please stand up

I've been through med school I know more than you I just forgot to look at your chart
I’ve been through med school I know more than you I just forgot to look at your chart 

Thanks to http://agenesiscorpuscallosum.blogspot.com/2009/06/diagnosing-agenesis-corpus-callosum.html for the use of the image

 

I remember going to a doctor’s appointment when my doctor took a sick day and there was a fill-in working in his place. I roll into the doctor’s office in my wheelchair, and the doctor has my chart and all of my past information. The doctor decided that I need a cortisone shot. The doctor asked “We’re going to have to give you this cortisone shot in your hip. Can you stand up?” Ummm….no, I can’t stand up. Yeah, I’m lazy. I wanted to be able to ride the elevator without guilt. 

 

I’m probably being a little hard on this guy. After all he was just subbing in for my doctor. This guy had one crucial piece of information that a normal person I meet who ask me if I can walk. doesn’t have, He had my medical chart. I don’t even know how those things work, but I would think ‘has cerebral palsy ,does not walk” should be right at the top of the Jamie Jordan medical chart, don’t you? If it doesn’t have that information, somebody tell me what’s the point of a medical chart?

See you guys tomorrow

 

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It’s hard work being a man on wheels

It's hard work that feels like play
It’s hard work that feels like play

I have never had a 9-to-5 job, I’ll give you a few seconds to let that sink in. I love to work. I’m doing something all day everyday. I truly believe it’s what keeps me sharp. So you can imagine my confusion at 13 when I told my parents I wanted to get a job and they made a very simple point. “how are you going to get there?” I don’t drive, I never have. I don’t have the vision or the reflexes for it. Me out on the highway in the driver seat of a car, would do more damage then Mr. Magoo after getting his latest pair of eyeglasses. Yes my parents could have gotten me there, but that’s a lot to ask someone on a daily basis when you already ask so much.

I love sitting around, playing video games and watching TV more than I should, but at some point in every kids life, you have bills to pay and they kind of sneak up on you. you wake up one day and realize that stuff. like video games, costs money and most of it costs more than you have. So you start trying to find ways to make some. In a previous post I talked about sweeping out the Junior high by pulling a Broom behind my chair. That was my first job at the age of about 13 I made a dollar a day. I have had a job ever since.

I’ve done video editing, audio editing, band management, social media management for a Company. I’ve been a standup comedian in virtual worlds, I promoted indie music. That’s a few jobs that I’ve had. I didn’t get rich doing any of them . I did them because I had to do something. As you probably gathered from this blog, I’m not a big fan of sitting around just glad to be alive.

I started this blog/media experience as a way to share my book. I wanted something ever-expanding that readers could come back to. I want to make this my new job. The lady that built this site goes by the name of Evie Marie. Honestly this whole thing was her idea. She works from home as well, for reasons she may explain in a post of her own later, hint hint.

You may be reading this thinking, “man I would love to work from home, that sounds awesome” it is awesome, but it’s also very hard. There is no structure, if I want to take the day off, I can but that means I won’t make money today that I may need for bills tomorrow.

Legitimate work-at-home jobs are hard to find. Do a quick Google search. Now, how many results pop up that don’t look like a scam. If you’re using the same Google I am, the answer is, not many.

The main reason for this is simple. Most companies want their employees to actually come into a building for work because they want to make sure said employee is actually doing work. The people who are successful working at home are those who started their own business and don’t answer to anyone.

That’s what Evie and I are trying to do with this blog. We’d like to make a business out of inspiring and making you laugh every day. It’s a blast, and we love doing it. That said, it takes a serious amount of time and effort. I’m using speech recognition to do this post, and it works okay but I’m having to stop and correct every third word, to the computer I must sound like the teacher from the Peanuts cartoons.

I say something like ” I am here to inspire you” and the computer hears” I am here to rewire you”. I type using one finger, so speech recognition is still faster than typing, but not by much. From start to finish this single post will take me about an hour to write, I’m not complaining just saying I desperately need a secretary. When we blow up and take over the Internet, I’m going to hire one of you to type. The job might also have the added benefit of getting to ride around on my wheelchair. Before we get there we need your support. It’s not mandatory but if you like what you see and don’t mind chipping in we certainly appreciate it. New rims on my wheelchair ain’t cheap. If you can’t donate that’s cool to. You can help us spread the word. Help us become the new sensation on Facebook and twitter. if a YouTube video of a piano playing cat can you get 50 million views, so can we, but only with your help. This blog has to be at least as cool as a piano playing cat. If it’s not, leave us a comment or an email and tell us what you’d like to see. Whatever it is I’ll do my best to make it happen. unless off course you want to see the piano playing cat, in which case, I give up.

Happy reading everybody 🙂

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Everybody poops: men on wheels are not exempt

These words are the reason I don’t do it in public

You know when you have that feeling like you “have to go”? You know what I’m talking about, right? Usually, you just get up and go. I don’t really get to do that. Normally, I have to wait until someone is able to help me to do that. The urge to poop can come on pretty suddenly. The worst is when my mom goes out of the house, and I’m feeling fine, but an hour later…
Mom: I’m going to go to the grocery store. Have to poop before I go?
Me: Nope
Me: phone: I’m sorry about this, but I have to poop.

When I was a kid, I had trouble controlling my bladder. I also have some trouble controlling my arms and legs and my eyes, but somehow the bladder control thing was much more embarrassing as a kid. That’s not really funny, but it’s true.

I’m a toilet clogger. I think it’s because I’m sitting all day, and the poop probably gets compacted while it’s in me, so when I “go” it comes out as a giant poop baby. If I’m ever on a date, I probably won’t bring this up as a topic of conversation, but since we’re all friends here, it seems ok. The good thing is that after I drop the big one, all my clothes feel really loose again. It’s like I can poop myself down a whole size. Pants that were once chafing into my stomach a little bit are now loose and relaxed. It’s like giving birth, I suppose. A poop baby birth.

The bad thing is that I don’t want to use public toilets because I prefer to clog up my own commode. I especially don’t want to clog up someone else’s personal toilet.

*Jamie clogs toilets* every time

I have to go to the bathroom.
OK.
I need you to lift me out of my chair and onto the pot.
OK.
I also need you to pull my pants down, ok?
OK.
I may need some help after.

and I clogged your toilet.

If I’m ever out of town with people who aren’t my parents and someone else is taking care of me, I just hold it. I would hold it the whole time. It’s like self-inflicted constipation. Regardless of the whole toilet clogging thing, I don’t want to have to ask someone else to wipe my butt afterward. It’s just awkward. If I’m on the road with someone who’s not family…I just don’t go.

As I’m writing this I’m thinking “who could possibly want to read this” I’m writing it anyway
Because this is something you deal with when you are handicapped. Everybody deals with it, but I would wager that most of you don’t need help on the toilet. Trust me, needing help changes everything. When I’m rich I hope to get a bidet or something similar so that maybe I don’t need quite so much help. I’m looking on Amazon as I type. It seems you don’t have to be rich to own one. For some reason I feel like to have one in your house, you must meet Robin Leach as a requirements first. Your question for the day dear reader. Do you have one and do you like it?

Thanks to https://www.pinterest.com/sandrawalling/handicapped/ for the graphic

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The most akward conversation ever: the one you avoid

Image from http://ifunny.co/fun/pXgXjnqK2
You can look I won’t run over you

I don’t know what kind of treatment other people in wheelchairs out there get, but I can tell you a little bit of how things are for me.
When I go out in public, it’s like a circus act. Everyone wants to look at me, because I’m different. I get that. But there are some things that are just interesting and unique to me.

It was before a really big event in April, and I had been going out to promote my public speaking to some school officials. So, I went out to dinner with a friend who will be there at the event. He and his wife came and picked me up and we went to the restaurant in the van. While my dinner companions were very cordial and open with speaking to me, and there were other people in the restaurant who were not afraid to speak and converse with me, the hostess did not speak to me or greet me. Some people are very uncomfortable speaking with someone “different” like me. At this particular dinner, I made it a point to openly introduce myself to the waiter and converse with him to save us both a lot of embarrassment. Maybe they think I can’t speak and that’s why they don’t try to speak to me. A lot of times waitresses won’t talk to me. They will ask the other people at the table what I want to order.

Sometimes people are apprehensive around me because they are afraid they are going to offend me, as a remedy for this, they don’t say anything. They think that I will be offended because they look at me, so they avoid eye contact with me at all costs. That is much more awkward than having someone say something that is possibly offensive. Imagine if you lived your whole life avoiding offending anyone. I would prefer to be treated like I am “normal”. I shouldn’t have to make such a huge effort to garner equal communication that a walking person would have. Also, you could literally ask me any question and I would not be offended. In fact, I encourage it. I wait eagerly for possibly offensive questions. They are my favorites.

Everywhere I go, nobody is expecting a guy in a wheelchair to show up. Even though everyone knows what a wheelchair is, it’s a huge shocker when it shows up in everyday life. There must be thousands of wheelchair bound people in the United States, yet we rarely see them. Where are they hiding?

My family was on a trip from Texas to Memphis. The car broke down and we had to call a tow truck. The tow truck driver said, “OK, hop into the truck and I’ll hook the van up to the back.” My dad let him know that we couldn’t do that because I was in a wheelchair and couldn’t just “hop” in the back. The guy towed the van with us inside of it. There were some strange looks as we drove very very slowly through town while being towed.

One of my favorite types of people I encounter in public are the “congratulatory” people, not because they are necessarily right in their approach, but because their ideas about my life in a wheelchair are a little weird. The congratulatory stranger will greet me with a very outgoing demeanor and tell me that I’m “the man” or “awesome” and they are “proud of me” just for existing as I do. I guess that it’s akin to when someone points out that a picture of a girl with a facial deformity is beautiful. I think people do this because they feel that they are offering something that nobody else in the girl’s life is telling her… she’s beautiful. It’s probably just the opposite. So many people are probably constantly telling her those words that she realizes it’s because of the facial deformity. I’m not saying that someone with a face problem can’t be beautiful, I am saying that “normal” beautiful people don’t get the same treatment. The word I’m looking for here that best describes this behavior of congratulating me for living life in a wheelchair is patronizing. I understand that the person means well, it just always puts me in a weird position.

There are also touchy-feely people that are not afraid to give me hugs and kisses like I’m a pet or a little child. I don’t mind this behavior, especially in the case of pretty women. Come to think of it, men don’t really do it so much, so I shouldn’t complain. And forget I mentioned it at all. If you’re a beautiful woman who wants to come up and give me a little kiss, that’s fine. You can sit on my lap too if you like

Image from http://ifunny.co/fun/pXgXjnqK2

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My kryptonite smells great and knows what it wants

Before you read this, let me just say that these are my observations and do not in any way apply to all women.

You’ve been warned

Women are always right. And even when they aren’t right, if they think they are right, then they are. Women also have a way of wording things so that she is right no matter what. If she says she feels like you are ignoring her, there’s no way that can be “wrong”. I’m not trying to be better here this paragraph was written by a woman and rings true based on my experience. That doesn’t mean it is however. Women are complicated and wonderful creatures, that I freely admit are a mystery to me.

Women can change their minds. The wheelchair is a chick magnet. But 6-8 weeks into a relationship, if you speak the words that you find HER attractive, she freaks out. “Spark” means something completely different to the women I have met than what it means to me. I think most women I have met were attracted to me in the beginning. Somewhere along the way most have decided that they would rather have me as a friend then get romantic. In my experience, women have always decided the path of my relationship to them. Meaning, I can find a woman attractive and want to date her. In most cases however the woman has had final say, on whether anything beyond friendship happens or not. I guess this is the way it should be. I’m not gay so I have no idea how this works with gay couples, but I have to think it must be similar. This is not a pity post. This is something I have struggled with in my life. Having a woman look at you and say “I want to be your friend, that’s not enough for you I’m sorry”. Every time this has ever happened to me, I have thought” wait, doesn’t what I want matter” what they want is important also of course, it’s just that the entire process has never seemed very balanced to me. This is probably the one area of my life that I have a little voice in my head saying “I wonder if it’s because of the chair” everyone struggles with self-confidence. I have an almost arrogant belief in myself in every other aspect of my life. I have succeeded with women before, but even after success being “friend zoned” always gets to me.

My point with this post is that we all have kryptonite. I created this blog to motivate and inspire you. So it may seem strange that I would point out my self confidence issue but as the front page clearly states ” we all have issues” how do you deal with them is what matters.

I have female friends that will tell you, I never give up. If I’m attracted to someone it never really goes away. I never get tired of trying to show a woman that I’m worth her time. I think most people give up too soon on the things that they want. I’m not saying you should be a stalker, or that you should get stuck on one person. what I am saying is the phrase “if it is meant to be it will happen” is only true in any situation if you’re willing to put in the time and effort to show that you’re worth it. Doesn’t matter if you’re talking about a potential love interest or a job you want. Everything in life that is worth doing takes time and effort. The amount of time and effort you’re willing to put in before you decide to move on to the next great thing is up to you.

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Being there for your friends takes more work then stalking them on Facebook

Do you have what it takes?

I don’t know how to make myself unavailable. If a friend needs me, I’m there. This may remind you of the movie “Yes Man” with Jim Carrey and Zoey DeChanel, but it’s not like I have a rule to say “yes” to any need from my friends but I am always available to those who are close to me. What do I mean by “close to me”? Many of us are involved in social sites and have a slew of friends on the internet that are associated with us, but not close to us. You know who these people are. I’m a Facebook curmudgeon. I don’t care about the games. I don’t care about people knowing what I’m doing all day every day, and I don’t care about what any of my friends had for lunch. The only part I like about Facebook is the messaging section. There are only about 3 people on facebook that send me messages, but hundreds that post what they ate for lunch that day. The people that send me messages are people that also have my email address and phone number, so there’s no real reason for it for me. We all learned about Facebook suggestions when we signed up. It was like magic. Facebook could find those people that we were connected with at some point or another in life, and re-connect us. Like Montel Williams, only more amazing.

There are the people that Facebook suggested you be friends with because they went to school with you. These suggestions fall into different groups. When I look through the suggestions facebook has for me, I start sorting these people into the groups. Some people fall into the “Oh, I can’t believe I hadn’t added this person before, they are practically my BFF.” Group. Then there’s the people that make me think, “Yes, I should probably add this person, because we were acquaintances in high school.” Then there are the people that I look at and think, “I remember going to school with this person, but did we ever even talk? Did we have a class together?” Then there are the suggestions that everyone dreads. Facebook suggests that you be friends with your ex girlfriend from high school. You know, the one that sliced your tires. Facebook wants you to be friends with the English teacher that flunked you. Facebook wants Batman to be friends with The Joker…since they are both from Gotham. I digress. I have often wondered why Facebook doesn’t have a dislike button somebody should really look into that.. My point is that Facebook gives us the illusion I’ll keeping up with a friendship. What it really does it makes it easier to appear friendly without much effort. In much the same way that texting makes it easier to communicate with a person you’d rather not speak to. I think I just made myself sound really old

I am consistently available for my friends that fall into the category of “closeness”, whatever that means to you.

If you want to have better relationships with your friends, try being available for them. Answer your phone when they call. Everyone knows that most of us have caller ID. And not many people like to leave voice mails.

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